Saturday 21 September 2013

Six-year-old awaits surgery abroad

Mkama Edward, 28, injects water into a feeding tube to quench the thirst of his daughter Magdalena, who is suffering the effects of swallowing a chemical she mistook for water. She is currently awaiting support from the goverment to attend surgery in India. 
By Athuman Mtulya, The Citizen on Saturday Reporter

Posted  Saturday, September 21   2013 at  08:10
In Summary
For six months now, Magdalena has been bedridden with a health complication arising from an innocent act gone horribly wrong. In March, after a fun-filled game in kindergarten, she reached for a bottle of water in the school’s store to quench her thirst.


Dar es Salaam. Young Magdalena Mkama turned six on Thursday. Unlike healthy children of her age, she did not celebrate her birthday-- only marking it with a silent family prayer.
For six months now, Magdalena has been bedridden with a health complication arising from an innocent act gone horribly wrong. In March, after a fun-filled game in kindergarten, she reached for a bottle of water in the school’s store to quench her thirst.
It would be the beginning of an emotional and painful journey that would take her from Musoma to Dar es Salaam, where doctors have been battling to treat the debilitating effect of corrosion. Magdalena apparently drank caustic soda, a water-like chemical used in the school to make soap.
To save her life, doctors have inserted a tube in her stomach to feed her. She cannot swallow anything, even saliva. All her food is in liquid form and must be injected through the tube. Magdalena’s lone caretaker is her father, 28-year-old Mkama Edward.
They are putting up at a friend’s house in Gongo la Mboto suburb, hoping a referral from Muhimbili National Hospital to India for specialised treatment will materialise soon.
The Citizen on Saturday reported Magdalena’s predicament in March. When she was transferred to Muhimbili, we traced her to Gongo la Mboto, where the father said he is praying every minute that the trip succeeds.
“Doctors say that is the only way she can be treated,” says Mkama, who has had to suspend his business back home to be with the child. “It is my last hope to have my daughter on her feet again.”
He was told that, due to patient traffic awaiting referrals abroad under government sponsorship, their case would probably be heard in three months’ time. Hundreds others can only dream of the best medical care for their loved ones.
Doctor Zaituni Bokhary, one of the specialists treating the girl, told The Citizen on Saturday that they had done everything they could and referring her to India was the only option left. “She needs immediate treatment, but the list of patients waiting for the same services is also long,” she added. “She will go to India soon. It won’t get to December.”
Magdalena was discharged on August 23 and Sayansi Kitebo has been magnanimous enough to host them. Mkama adds: “Kitebo is my childhood friend. We went to school together back in the village. He is doing us a big favour.
I can’t thank him enough for all his help. I know the list of patients waiting to go abroad is long, my only prayer is that the whole process moves fast so we can lessen the huge burden on our families.” A doctor who did not want to be named told this paper that the immediate challenge is to ensure the patient eats the right food before surgery.
“Getting adequate nutrition, sometimes due to cost implications, is the biggest problem patients using gastrostomy tubes face,” the medic said. “If that persists, it may give rise to complications which might worsen the patient’s health.”

Mkama is experiencing this challenge. Magdalena needs Aloe Vera juice that is rich in nutrients.
The problem is that it costs Sh40,000 a litre and lasts only two weeks. He says: “The last dose ran out three weeks ago but I don’t have the money to buy another immediately. She is in pain, and it hurts me to see her suffering.
She will say she is hungry, but when you give her food she says she is full. Half an hour later, she is hungry again. That is how we live.”
The family has spent all its savings from his small business importing goods from Kenya for distribution in Musoma township. Back home, his wife is taking care of three other children, including twins who were born just three days before Magdalena drank the poison.
“The kindergarten management has helped too, but I receive significant help from my family and the Centre for Women and Children Assistance,” a local community organisation.

SOURCE: THE CITIZEN